Friday, April 06, 2012

A Food Allergy Nightmare

Yes, it happened.  The Little Man had an anaphylactic reaction at school yesterday.  He's fine now.  But the whole thing was scary and happened needlessly.

Yesterday for Holy Thursday the school does a retreat that includes the children and invites the parents to participate for the day.  The boys wanted me to go and although I love spending time with them in their activities and being a part of their school experience, I'm tired, pregnant, and have a ton things to do.  Spending 5 hours at school wasn't on the top of my list.  Last year was the first year the school did this.  In previous years they only had the kids participate.  Although I planned on going last year, The Little Man became ill and had to stay home from school.  This was also the day that I (won the mother of the year award) forgot to pick Older Boy up from school.  So I decided to go this year partly to make up for last years debacle and partly because with the new baby coming, I probably will never go again.

As Thursday crept closer, I was having second thoughts.  Maybe I'll just skip it?  Maybe I'll just go for part of it?  But Wednesday after school (long after school was out and everyone went home) the Little Man said "My teacher said that we'll be using bread and nuts in school tomorrow but it will be OK because I just won't touch it".  HUH?  What?  What are they doing with this bread and nuts?  He didn't know.  How will  they be used?  In Class?  For a project?  Why wasn't I informed about this ahead of time?  I was angry but I couldn't call anyone so it solidified my attending the retreat so that I could see what was going on.  I spoke with the teacher in the AM and she said that the bread was pita bread and they were passing it around during one of the sessions for each kid to break off a piece.  It was symbolizing the "unleavened" bread that they ate during Passover.  They were having peanut butter and jelly sandwiches for lunch (it was a free all school lunch).  He just wouldn't touch the nuts (I erroneously assumed that the PB&J was the "nuts").  The kids were broken up into groups to go through each session of the retreat.  Siblings may or may not be in the same group and both boys wanted me there.  I lucked out in the AM because the boys were together.  This is where the bread passing took place and I made sure that the Little Man did not come in contact with the bread.  They also handed out empty egg cartons for an art project (no one mentioned egg to me) and I also was able to help the Little Man by pass that possible disaster.

Lunch was eaten in the classrooms this year, not in the cafeteria as was the case last year.  So I made the decision to eat in the Little Man's room so that I could keep on eye on the PB&J.  All went well there, except that I was confused as to how PB&J was allowed in classrooms that were supposed to be "peanut free".  At least that's what I have been told the last 3 years. Now I'm not a Pollyanna.  I've been in that school enough to know that the classrooms aren't really peanut free.  I've seen granola bars with nuts, Reese's peanut butter cups, peanut butter crackers, and more all in the classroom.  Clearly "peanut free" is not enforced.  But for the school to actually supply the peanut butter confused me (and ticked me off).

After lunch there was another session of the retreat and my boys were not together.  Thinking that I navigated the bread and nut dilemma, I opted to attend the session with the Older Boy.  His session was very nice.  It was uplifting and didn't contain any food at all.  Apparently the Little Man had a different session that I was unaware of.  We'll get to that in a minutes (I know, I'm writing a book here, but stay with me).  After the 3rd session, I went to my car to wait for dismissal.  I saw parents who attended the retreat coming out with their kids.  Crap.  I should have picked up mine so we could get out of there, but apparently I didn't get the memo.  I'm glad that I didn't though because the Little Man would have had his anaphyactic reaction in the car on the way home.

As I'm waiting, the secretary sticks her head out the door and says "Janeen, the Little Man is having an allergic reaction".  When I get in the nurse's office, his eyes are blood red and so is his face.  He can't stop rubbing his eyes.  Could it be food?  Is it seasonal allergies (at this point there's no other symptom except for the eyes)?  I give him Benadryl in case it's seasonal but after 5 minutes it's not working and it's getting worse.  I see a few hives around his eyes and one eye is starting to swell shut.  I pop him with the EPI Pen and have the nurse call 911.

The fire station is right down the street and they are there in about 2 minutes.  They sent 2 ambulances and a police man so there is now a lot of people crammed into the nurses office.  Questions are asked about the EPI Pen and what caused the reaction.  I don't know what caused the reaction.

Then it comes out.  In the Little Man's 3rd session, they had pecans in zippered baggies and the kids smashed them with Lincoln Logs (except for my son who apparently just sat there as this was going on).  It had something to do with learning about the beating that Jesus took on Good Friday.  I can't explain it because it makes no sense to me.  I just kept hearing "But they were in bags".  REALLY?  AND BAGS DON'T EVER GET HOLES IN THEM, RIGHT?  So we aren't positive, but my best guess is that pecan protein got into the air from the "beating" and the Little Man breathed it in causing the reaction.  Could it have been the PB&J?  Maybe if he touched something that had peanut butter on it and then stuck his fingers in his mouth.  Could it have been something from the pita bread?  Maybe, but I doubt it and that was 3-4 hours before this reaction occurred.

I'm betting on the pecans.

We've never seen a reaction to pecans.  We've never had pecans in the house.  We never will have them around him again.

The Little Man, Older Boy and myself got a ride to the hospital courtesy of the fire department ambulance.  I'm glad that I had them call 911 and didn't try to drive him myself (please always call 911 when an EPI is used).  On the way there he said his throat was scratchy and they gave him some oxygen even though his levels were showing up fine.

Once in the ER 6-7 nurses and doctors came in to triage him.  He ended up getting another shot of EPI (because his eyes and skin were still red, he had some rashes, and his throat was still scratchy).  They gave him a steroid, Pepcid (which apparently has antihistamine properties... I did not know this), and more Benadryl.  The EPI was given in the arm but the others were given through I.V. and he was not happy about that.  He also got a breathing treatment because his lungs were wheezy and he got a little over a 1/2 a bag of fluid through the I.V.  They had us stay 4 hours so they could monitor him and make sure the reaction wasn't biphasic.

Since this story has become epic, I won't share my "tips".  I'll save those for another day and a separate post.

He's home now and doing fine.  He'll continue to get Pepcid, Benadryl and the steroid over the next 2-3 days to keep any biphasic reactions at bay.  He'll also get extra love and attention for all that he's been through.

I'll also be sending the school an e-mail demanding a meeting after spring break is over and I'll be revising his "action plan" to get us through the end of the year safely.

I'm so thankful that this ended well.  But I need to do everything in my power to make sure that this never happens again.  It was completely needless and senseless and they put my child's life in danger.

If you got this far, thanks for reading.  I promise to try and make the "tips" post shorter.

18 comments:

Penny said...

I can't wrap my mind around how many people at that school thought the PB&J sandwiches and the pecans would be "okay". I hope your meeting after spring break wakes all of them up in a big way. I am horrified for you.

Aimee said...

Whoa. Just whoa. First of all, that's a heck of a lot of nuts in one day - for any kid let alone one who is so severely allergic! My kids' school is not perfect on that front by any stretch of the imagination, but they have pretty much shut down any kind of nut related activities that are not specific to an individual child's lunch. And the whole "he'll be fine because he won't touch it" reasoning is kind of beyond me -- have you met kids? They touch everything! I know LM is much more careful about touching stuff than the other kids, but I know from experience that if your children are not raised with a food allergy in the family, they will not understand the gravity of the situation even though the mean well towards their classmate!

Thank God you were there and I'm hoping the ambulances and police were a big wake-up call to the school, even before you get in there for that meeting! Hope it all goes well and that LM is feeling better today.

Unknown said...

Wow. Just wow.
I'm so sorry that it happened and thankful that he is okay!

Maria Hardy said...

I'm so sorry!!! Huge hugs! So hard to hear the school excluded and endangered him this way. i cried yesterday just talking to my kids about safety around the house, food allergies and Epi pens. I'll be thinking of you and hope the school can improve their programs to keep him safe.

andria said...

I just cannot get over how they KNOWINGLY put your child at risk to bang around a bunch of nuts and play some sort of game that probably won't teach the kids anything different about the stations of Christ. We have 1 child in our little preschool that sorta kinda might be allergic to some tree nuts, and we got rid of EVERYTHING nut related and DO NOT allow it in whatsover. I am so pissed for you right now that I want to run up there and scream at them. I surely hope this opened some eyes with the administration and showed them you weren't kidding once and for all. It's time for the whole world to realize we can't let kids die just so some others can have a little treat.

Jenn Casey said...

WOW. I know you've got good things to share with the school, and hopefully now that they've seen what happens they will be more than willing to accommodate your requests.

But wow. I'm so glad he's okay!

Bailey's Leaf said...

Janeen,

First, I would have many heads on a plate. If you need me to bring extra plates, I could meet you in the hall. This is so beyond the realm of okay or excusable. :deep breath: So. not. okay.

Classrooms are to be peanut free. Okay, THEN DO IT. They know of his possible reaction, THEN BE MINDFUL! Pecans-- really? Were they making resurrection cookies? (That's what it sounds like.) I get that they want to observe these things, but you shouldn't have to keep your child out of school because they are being idiots and not attending to the safe care of your son. So. very. not. okay.

I knew about the anacid with a reaction, but didn't know if I used my EPI that I would have to call 911. I assumed in a stupid way that I could drive myself. I don't think that I'll ever get to that point, but thanks for teaching me a few things.

Do keep us updated. I'm glad that he is okay and on the mend. Still, I'm sad that he (and you guys) had to go through that. I would not be happy and I don't know how constructive I could be in that situation. I will pray for you and Hubs. I'm thinking that he might be hauling along with you on this adventure, eh? We pray for constructive speech. We pray for an altered action plan that will be more effective. We pray that the school learned from their errors and won't repeat. We pray that Little Man continues his upward trend and that Older Boy isn't permanently damaged from the affair with pecans. ARGH.

Sheesh.

Barbara H. said...

What an ordeal. Hopefully this will be a wake-up call for them.

Besides the whole nut issues, banging pecans to assimilate Jesus's beating sounds like a strange activity to me.

Michelle said...

Oh my goodness! How absolutely scary that must have been for him and you! What a weird way to symbolize Jesus being beaten too. Sounds odd to me. Also sounds very strange the school would provide PB&J for all the students when the rooms are supposed to be peanut-free. Unbelievable. So glad he is otherwise ok!

kerri said...

I am so, so sorry to hear this happened to the Little Man, Janeen, and that it happened in such UNNECESSARY ways is absolutely ridiculous.

I'm sure this has all crossed your mind but really, I just don't understand the school's position on this at ALL. Why on earth would they choose the lunch they did for the students when they KNOW about a child's allergy?! Honestly, it is ONE meal, it is not that difficult to make ONE meal safe! While slightly different fromt he school scenario, but not a ton, I work at a daycare with 55 kids. One or two of whom have nut allergies. ALL the food we provide is nut-free, and we request all that the kids bring be nut-free too. But you know what? It's not. As a staff, I diligently read every single label. If it's a 'may contain traces...' it stays home. And then kids come in with the exact same stuff. And obviously that's the fault of the ADULT in their life, not the fault of the child.
What you've described is purely negligence [and stupidity] on the part of the school . . . and should NEVER happen!

The whole pecan/Jesus thing is SO bizarre. Wouldn't they have learned a whole lot more playing dodgeball with the same purpose?! [And getting physical activity for that matter?]

Poor Little Man. I hope he is feeling back to 100% very soon . . . and that the school LEARNS hardcore from this. I can only imagine that it will be difficult for him to feel okay and SAFE going back to school.

Keep us posted on this issue, J. So sorry you guys have to deal with this on top of all the hard work you already do to keep him safe.

Thanita said...

Janeen,

I'm so sorry your son (and you) had to experience this. I hope you all are doing well and hope your little guy is feeling better. I want to give you a hug through the computer!!!!

Thanita

Jeff said...

Janeen,

That is a nightmare. We are so glad to hear it turned out well. We've taken precautions at school events, too, and often bailed out early when there are too many unknown or uncontrollable factors. Other adults just don't get it sometimes. Hang in there.

Missy @ Marketing Mama said...

I'm so sorry to hear about what happened - it puts my minor little scare this week into serious perspective. I'm also confused about the school's behavior and thinking it's okay to have all those nuts in the school. Perhaps this incident will jolt them into actually following the plan.

I'm also so grateful for your son that you were actually on school grounds - as perhaps the nurse would have taken longer to make a call, or make the decision to use the epi pen.

The truth is that I'm more than terrified to send my daughter off to school, and the more stories I hear like this, the more freaked out I am...

And by the way - beating the crap out nuts to represent the beating Jesus took? WTF? (And my oldest goes to a Catholic school, and so did I... that's just bizarre).

I'm sure you are still processing everything - know that the food allergy moms of the world are supporting you! hugs xoxo

Erica Andert said...

First off I am so sorry this happened to your son. Second I don't understand why pecans have anything to do with Jesus and Holy Thursday. There are other ways to address this. And as far as PB&J in a Peanut Free class room well thats just enough to put me over the edge. I'm glad your son is doing better. Hope the school finally GETS it now, and see what the importance of the allergen free classroom and activities are for. Good Luck and (HUGS) to your little guy.

Barbara said...

I am sorry to hear about your son's predicament but not terribly surprised. The officials at your sons' school should be drawn and quartered. Their ineptitude and casual attitude toward your son's safety put his life (and possibly others) at risk.

There are two articles you should consider. The first, Open Letter to Parents: Why Your Child Can't Bring Peanut Butter to School should be printed and personally handed to every school official that might be responsible for some aspect of your child's welfare. It explains why food allergic children need special accommodations and describes the dangers of anaphylaxis. The other is A Mom's Perspective: Registering Your Food Allergic Child for Kindergarten. While your son is no doubt older, the article provides guidance on how to approach your school officials and outlines many policies your school should have in place or should be adopting. You need to set them straight... they're reckless.

Beth said...

I don't know if this is on your radar, but home schooling is an option. We have 5 kids, I'm a stay at home mom and former public school teacher. Frankly, I never thought I would home school, but it's been the best decision we've made for our kids. I don't know how many years we'll do it, but until our allergic children can self-administer the Epipen, they're being educated at home. We have an amazing home schooling group and quite a few of the 25 families in it have at least one child with food allergies. The journey of home schooling has been such a blessing to our family and our children's health.

ChupieandJ'smama (Janeen) said...

Thank you all for your kind words, sympathy and suggestions. This has been such a horrible and scary experience. We are even hesitant to send him back to school at this point. We'll be meeting with the school on Monday (they are on spring break right now) and will take it from there.
We really appreciate all of your kind words and support.

Anonymous said...

When are you going to call an attorney?!?