Wednesday, December 06, 2006

Thursday Thirteen #8


Thirteen Things That Keep My Son Safe and Help
Us Deal With His Multiple Food Allergies


1. The Epi Pen: We don't leave home without it (and we have 2 at home). It is The Little Mans lifeline in case of a severe reaction. We've only used it once and I pray we never have to use it again, but I'm thankful that it is there.
2. Our Doctors: We are lucky. Our Pediatrician and our Pediatric Allergist work together and keep The Little Man's best interest in mind.
3. Our family and friends: They are a support network and help keep me sane.
4. Food Allergy and Anaphylaxis Network: Thank God that FAAN is there. I don't know what I would have done when The Little Man was first diagnosed with food allergies. I was lost and scared and FAAN is an organization dedicated to food allergies and they have many tools that helped me get a grip on this and taught me how to deal with it the right way.
5. The BabyCenter Food Allergy Board: What a fantastic group of ladies (and a few guys) that give good advice or a shoulder to lean on
6. The Mustard Seed Market, Wild Oat and the organic/health food section of our grocery store: I may have to shop at 4 different places to get what I need, but it's there. And for that I am thankful. And if I can't find it there....
7. I can find it at: Allergy Grocer, Gluten Free Mall, Gluten Free Pantry.
8. The Internet: I use it as a tool for research and to contact food manufacturers regarding ingredients in their products or possible cross contamination with their products.
9. The Parents Guide To Food Allergies by Marianne Barber - This is a wonderful book and I highly recommend it to anyone who has a child with food allergies.
10. Cooking Free by Carol Fenster, Great Foods Without Worry by Cindy Moseley, and The Child Friendly Food Allergy Cookbook by Leslie Hammond and Lynn Marie Rominger: Although I'm sure that there are other wonderful cookbooks out there, these are mine and they have saved me. I am thankful for all three.
11. His Medic Alert Braclet: Since The Little Man is only 2 and can't communicate the fact he has food allergies, this braclet does it for him. If I'm ever incapacitated and can't communicate for him, I know that his needs will still be met. The braclet lists all of his allergies and a number to call for all of his emergency contact information. If he ever gets lost or seperated from us, people will know not to feed him certain things. What is the first thing people do to comfort a child??? Give him candy or a cookie and that would set The Little Man off into having a severe reaction.
12. My older son. He's a blessing by himself, but he's also one of his brothers biggest advocates. He tells everyone not to feed his brother because he has food allergies. He also knows that we don't allow playdough at our house (it's made with wheat) and told his teacher that he could not accept it as a gift.
13. The Little Man himself: What a blessing he is and I know that God gave him to us because although sometimes we find his allergies difficult to deal with, we can take care of him and keep him safe.






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31 comments:

Dr. WhoAmI said...
This comment has been removed by a blog administrator.
ChupieandJ'smama said...

Sorry I had to remove the comment by Dr. Whoami. The comment was way tooooooo long and I'm not sure it was coherent. Nothing obscene, just didn't make any sense.

Tug said...

Wow...what an awesome mama you are!! Best of luck...

Happy TT!

DK said...

Thank God for Pediatric Allergists! My allergist happens to be a pediatric specialist - I go to see him next week before cedar season sets in. As he gets older, your little guy will greatly appreciate your constant vigilance... Way to go, Mom! Happy Thursday,
DK
http://aflyoverblog.typepad.com

Mikala said...

The Epi Pen is a Godsend. Almost literally.

Great list momma and happy TT!

Mikala's 4th TT is up!

Mama Duck said...

Awwww, it's so worth it for him!! Happy TT and happy WW too, I'm so behind ;).

Janene said...

You know, I'm so nervous about my little guy having food allergies and how I would even know if he did! I scares me because now is the time when he is trying new things...I guess I just have to take it a little at a time. He's not into much other than fruits and veggies at the moment. :)

I have to say that I'm inspired by what a good mom you are being so educated and knowledgable! Way to go!

Happy Thursday!

Rashenbo said...

An important and helpful list. We are fortunate to just have some basic run of the mill allergies... like hay fever and seasonal pollens...

Our Pea Pie had lactose intolerance for a while and that was a nightmare. Luckily, she outgrew it.

Thank you for sharing all this lovely information.

Missy said...

You are truly blessed to have another child that takes care of his little brother. Great list.

Shoshana said...

This is a great list. My first son is allergic to most food save 5 maybe. I too carry epi-pen jr, and have to only use it once.

I am grateful for his doctors, and my family members..in making sure he never accidentally eat anything that could kill him.

Michelle said...

that is a great list of things you have to help with the food allergies!

Gattina said...

A lot of things to think of !

Stacitee said...

Wow. You've got a lot to deal with. Sounds like you are doing a terrific job!

Amy said...

Wow. I pray I will never have to know how to use an epi pen.

I also wanted to recommend The Restricted Gourmet for allergen-free recipes. The author has a young child with severe corn and soy allergies as well as several others.

Norma said...

This is a great list and very educational. We never had to deal with allergies, although my daughter developed a few as an adult. How great that his brother looks out for him.

Thanks for visiting my TT.

Caylynn said...

Great list! You have a wonderful attitude about his allergies - it can't be easy dealing with them. Thanks for educating us.

Sue said...

Great list Janeen. #12 & 13 made me all teary. I love how your oldest refused the playdoh - how sweet. They really are a blessing.

:)

Judy Callarman said...

The Little Man is very fortunate to have parents concerned enough to know and do as much as possible about his allergies!

Michelle said...

I just saw on Pea's blog that we have the same elf name- too funny!!

Ma said...

Wow! Reminds me of one of my nephews. The allergist made a list of things he should have.

I'm up

Just Expressing Myself said...

Just getting through a day is a job for you. I can not even imagine what birthday parties, school events and such are going to be like for you. He is a lucky little guy - he has a great family behind him.
Thanks for sharing,
Frances

Carrie said...

so sweet that his older brother takes care of him!

good job mommy!

happy tt!

Karla said...

this is a great list -- I am going to forward a link to some friends with this same issue!

Blessings,
Karla!
HapppT13

Julie in Texas said...

Bless your heart! I can't imagine the steps you must go through each day to keep your son safe. What a blessing that we have organic markets and healthfood stores readily available.

Happy TT!

Aimee said...

I admire your dedication in so many ways. We don't have allergies in our family, but I imagine dealing with the Boy's SPD and all his therapists is kind of in the same league as your little guy. (although, I don't have to worry about anaphylactic shock with SPD, thankfully)
Happy TT!

Kelli in the Mirror said...

Great list! We LOVE the brownies from Gluten Free Pantry. :)

Melissa said...

My youngest daughter has a soy allergy. She'll probably grow out of it, but it was scary when it was just getting diagnosed. Best of luck to you as you travel down this road.

Barb said...

That child is lucky to have you for his mama and you're lucky, too. He sounds like a sweetheart. You knowledge on this subject never ceases to amaze me.

Wendy Ann Edwina D'Cunha e Pereira said...

My kids have absolutely no food allergies... an I am still exhausted trying to keep up with them and their tiny ailments.... You must really be very patient and enduring... I don't even know if and where we have food allergists here.... All the best to you and hope all You little guys allergies just disappear one day... All the very best

Margaret said...

Thanks for the visit. Good luck and Happy TT

http://maggie.coffeeshopmafia.com

pedriatric ENT said...

I really feel with having an allergy in the family.

-Kaylee